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Contact MPS Families

On this page you will find some of our MPS families who have made themselves available as contacts in the provinces.

Talking to other parents can often be very helpful, especially for new families – especially in the early stages after the diagnosis. Information from doctors and from various publications has to be digested first, and the question is much more of interest: How can one even live with an MPS child?

Therefore communication between our members is very essential. Parents can support one another in many ways. It starts with someone listening and leads to practical advice on how to deal with that child. MPS parents have been through all of this – or they know someone who has been through it.

To make the first step towards personal contact with other families easier for you, you will find some contact addresses here. The families are sorted by provinces, but that doesn’t mean you can’t contact each of them.

According to the variety of mucopolysaccharidoses you are looking for a contact person for the special form that concerns you. The chairperson of the company can of course be contacted at any time.

Give us a call or click on the email address provided. Ask your questions, seek support, and let the communication flow

Burgenland

currently no active contact persons

Carinthia

Family Jarnig

Morbus Sanfilippo A (MPS III A)
+43 (0)4286 2505
gema.jarnig@telering.at

Family Auernig

Morbus Morquio B (MPS IV B)
+43 (0)4785 605
barbara.auernig@mps-austria.at

Lower Austria

Family Velich

Morbus Hunter (MPS II)

+43 (0)650 52 52 47
saskia.etienne@mps-austria.at

Upper Austria

Family Weigl

Morbus Morquio A (MPS IV A)
+43 (0)664 522 0 682
office@mps-austria.at

Salzburg

Family Rieger

Morbus Sanfilippo A (MPS III A)
+43 (0)6463 7745
info@fesengut.com

Tyrol

currently no active contact persons

Vorarlberg

Family Yurdakul

Morbus Hurler Scheie (Typ I S)
+43 (0)660 1566633
35hicran35@gmail.com

Steiermark

Family Schwaiger

Morbus Sanfilippo A (MPS III A)
+43 (0)664 735 740 701
marlies.schwaiger@aon.at

Family Rechberger

Maroteaux-Lamy (MPS Typ VI)
+43 (0)676 792 70 64
elisabeth.r.1@gmx.at

Vienna

Marion Kraft

Morbus Hurler (MPS Typ I)
+43 (0)664 214 87 46
marion.kraft@kraft-co.at

Shopping counts!

In addition, there are other ways of how to help MPS children when you do your shopping:

  • Have you ever heard of amazon.smile?

This link is a donor link: smile.amazon.de is nothing else but the amazon you know. The same products, the same prices, the same service. Smile.Amazon is a simple way for customers to support a non-profit organisation of your choice without additional costs with every purchase.

Click the amazon smile logo, log in as customer and choose the aid organisation you want to support with your purchase. Amazon Smile started on 11 November 2016 in Germany and Austria: Amazon donates 0,5% of the sale price of its qualifying smile.amazon.de - purchases to the selected charity.

This is how amazon customers can support non-profit organisations with 0,5% via the amazon smile program.

Donation account

Main account
VKB: VKBLAT2L | AT07 1860 0000 1700 5000

Account for scientific research (earmarked)
VKB: VKBLAT2L | AT52 1860 0000 1700 0019

account for therapy and treatment (earmarked)
VKB: VKBLAT2L | AT05 1860 0000 1702 3854

Account for mailing cost
Raiffeisen: RZOOAT2L736 | AT61 3473 6000 0011 1211

Contact:

MPS Society and related diseases

Michaela Weigl
A - 4612 Finklham 90
Phone & Fax: + 43-7249-47795
Mail: office@mps-austria.at

ZVR: 423245305 | DVR: 10616741

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